CYLAS MYCHAL TOINEETA: MISSING YOU

April 29, 2009

MISSING YOU

Today I was reading about a little girl named Kayleigh. She's been in the NICU for 10 months and she's partially brain dead. She will never learn how to talk, walk, or comprehend the things around her. While reading her story tears flooded my eyes like never before. I kept thinking I know what her parents are going through. I've been there and I've done that. But really, I haven't been there. She's alive. The part of her brain that is working is what's keeping her heart beating. They're pain is much greater than mine. They are able to touch their daughter and I am not. You are gone mentally and physically. There is nothing that I can to make you feel better. Her parents are so close to having her completely. They don't know how much time they have with her and hope to take her home. God has blessed them with this time and their thankful for it. They've had her for 10 months and are thankful for that time. Since you've died, I been questioning my faith wondering where I fit in. I've been asking God, Why? I've been very selfish wishing for more time with you. I've been angry and unappreciative of what time I did have. I had 3 weeks with you, but 3 weeks, in my mind is NOT enough. I want more and sometimes I demand more time. But Kayleigh's parents are thankful and I keep thinking should I be thankful? Should I stop with all the bitterness? Should I stop hiding from the light that wants to shine in my life? I went to lunch today re-living your final day in the NICU, crying for you and crying because I was so touched by Kayleigh's story and how strong her parents faith in God is.

You would think that after 15 months I would have my act together (but I don't). I still miss you just as much as I did the night you died. I don't cry everyday anymore, but when I do cry it seems never ending. All the events that took place from the time of your birth to the time of your death are still fresh in my mind. I try to keep them hidden, but they're still there. I can still close my eyes and replay everything like a movie. I still regret not telling you goodbye before they put you in an induced sleep. I regret not looking into those dark brown eyes just one more time. I regret not fighting harder for you. I was foolish to listen to the doctors. There were many times I should have fought for you, but I believed the doctors could make you better.

There is a peice of my heart missing. It left when you left. You will be my son forever and always. I will always miss you. I will never forget you. You have my love and I hope you can feel it in heaven.

Mommy

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~~IF TEARS COULD BUILD A STAIRWAY~~

I think of you often
and make no outward show,
But what it means to lose you,
no one will ever know
You wished no one farewell,
not even said good-bye,
You were gone before I knew it,
and only God knows why.
You are not forgotten
nor will you ever be,
As long as life and memories last,
I will remember thee.
To some you may be forgotten,
to others a part of the past,
But to me who loved you dearly,
your memories will always last.
Nothing can be more beautiful
than the memories I have of you.
To me, you were someone special,
God must have thought so too!
If tears could build a stairway
and memories a lane,
I would walk all the way to Heaven,
and bring you back again.

Shared by Beth on BBC (thanks Beth)

I'm Spending Christmas with Jesus this Year

I see the all the beautiful Christmas Trees
Around the world below,
With the all the lights like heaven's stars
Reflecting in the snow..

The sight is so spectacular
Please wipe away that tear,
For I am spending Christmas
With Jesus Christ this year..

I hear the many Christmas songs
That people hold so dear,
But the sounds of music can't compare
With the Christmas choir up here..

For I have no words to tell you
The joy their voices bring,
For it is beyond description
To hear as the angels sing..

I know how much you miss me
I see the pain inside your heart,
But I am spending Christmas
With Jesus Christ this year..

I can not tell you of the splendor
Or the peace here in this place,
Can you just imagine Christmas?
With our Savior, face to face?

I will ask HIM to light your spirit
As I tell HIM of your love,
So then pray one for another
As you lift your eyes above..

So please let your hearts be joyful
And let your spirit sing,
For I am spending Christmas in heaven
And I am walking with the King!!!

author unknown

20 Things I wish you would Remember

1. I wish you would not be afraid to mention Cylas. The truth is just because you may never seen him doesn't mean he doesn't deserve your recognition.

2. I wish that if we did talk about Cylas and I cried you didn't think it was because you have hurt me by mentioning him. The truth is I need to (and often want to) cry and talk about Cylas with you. Crying and emotional outbursts help me heal.

3. I wish that you could talk about Cylas more than once. The truth is if you do, it reassures me that you haven't forgotten him and that you do care and understand.

4. I wish you wouldn't think that I don't want to talk about Cylas. The truth is I love him and need to talk about him.

5. I wish you could tell me you are sorry Cylas has died and that you are thinking of me. The truth is that it tells me you care.

6. I wish you wouldn't think what has happened is one big bad memory for me. The truth is the memory of Cylas Mychal, the love I feel for him, the dreams I had and the memories I have created for him are all loving memories. Yes there are bad memories too but please understand that it's not all like that.

7. I wish you wouldn't pretend that Cylas never existed. The truth is we both know I had him growing inside me for 9 months.

8. I wish you wouldn't judge me because I am not acting the way you think I should be. The truth is grief is a very personal thing and we are all different people who deal with things differently.

9. I wish you wouldn't think if I have a good day I'm "over it" or if I have a bad day that I am being unreasonable because you think I should be over it. The truth is there is no "normal" way for me to act and I will never be "over it".

10. I wish you wouldn't stay away from me. The truth is loosing Cylas doesn't mean I'm contagious. By staying away you make me feel isolated, confused and at fault for something I had no control over.

11. I wish you wouldn't expect my grief to be "over and done with" in a few weeks, months, years or ever for that matter. The truth is it may get easier with time but I will never be "over" this.

12. I wish you would think of Cylas as a baby and and not just a neo-natal death. The truth is he was a human life. He had a soul, heart, body, legs, arms, a face and a unique personality. I have seen my baby's body and face, I have heard him cry. My baby was a real person.

13.Cylas' due date, his birthday, the day he died and Mothers Day, are all important and sad days for me. The truth is I wish you could tell me by words or by letter that you are thinking of me (and Cylas) on these days.

14. I wish you understood that losing Cylas has changed me. The truth is I am not the same person I was before nor will I ever be that person again. If you keep waiting for me to get back to ""normal" you will stay frustrated and continue waiting. I am a new person with new thoughts, dreams, beliefs, and values. Please try to get to know the new "me"-maybe you'll still like me.

15. I wish you wouldn't tell me that I can have other babies. The truth is I want the baby I lost and no other baby can replace Cylas Mychal. Babies aren't interchangeable.

16. I wish you wouldn't feel awkward or uncomfortable talking about Cylas or being near me. When you do, I can see it. The truth is it's not fair to make me feel uncomfortable just because you are, I'm dealing with enough as it is.

17. I wish you wouldn't think that you should keep away because all my friends and family will be there for me. The truth is, everyone thinks the same thing and I am often left with no one.

18. I wish you would understand that being around pregnant women is uncomfortable for me. The truth is I feel jealous, angry and sad.

19. I wish you wouldn't say that everything happens for a reason. The truth is as far as I'm concerned no explanation would or could ever be good enough to justify that fact that Cylas is gone.

20. I wish you would understand what you are really saying when you say "the next baby will be fine". The truth is how do you know? Can you gauruntee that my next baby will be healthy? What will you say if it happens to me again?

*adapted and edited from Rainbow Over my Broken Road Thank you Kristi.*

A Poem for Angel Moms

I thought of you and closed my eyes
And prayed to God today.
I asked what makes a Mother
And I know I heard him say,

A Mother has a baby
This we know is true.
But God, can you be a Mother
When your baby's not with you?

Yes you can, he replied
With confidence in his voice.
I give many women babies
When they leave is not their choice

Some I send for a lifetime
And others for a day.
And some I send to feel your womb.
But there's no need to stay.

I just don't understand this,
GodI want my baby here!
He took a breath and cleared His throat
And then I saw a tear

I wish I could show you
What your child is doing today.
If you could see your child smile

With the other children and say,
"We go to earth to learn our lessons
Of love and life and fear.

My Mommy loved me oh so much
I got to come straight here."
"I feel so lucky to have a Mom
Who had so much love for me.

I learned my lesson very quickly
and My Mommy set me free."
"I miss my Mommy oh so much
But I visit her each day.

When she goes to sleep at night
On her pillow is where I lay."
"I stroke her hair and kiss her cheek

And whisper in her ear,
Mommy don't be sad today
I am your baby and I am here.

"So you see my dear sweet one
Your children are okay
Your babies are here in My home

And this is where they'll stay.
They'll wait for you with Me
Until your lesson is through.

And on the day that you come home
They'll be at the gates for you.
So now you see what makes a Mother

It's the feeling in your heart.
It's the love you had so much of
Right from the very start.